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Posted by Genghis
In Reply to: All diskcure patients please respond posted by keith johnston
Yes, it would be helpful if all who receive the injection could report on their results. The problem is the only way to get all diskcure patients to respond is to question everyone who gets the shot or to ask the next 100 consecutive people who get the Enbrel injection to rate their pain and level of improvement immediately after the injection and at one week and one month and 3 months post injection.
Unless someone is willing to stand outside the door of the facility and gather pooled data or ask people as they exit to submit a report to this website it will be very difficult to gather any meaningful data. Tobinick in his LA Times article claimed that about 2/3 of the patients respond. But to what extent and for how long, and can he be believed since he is anything but an impartial observer? He should have presented his data for peer review long ago. A friend of mine who went there 6 months ago received the injection and (incredibly) had to sign a non-disclosure agreement which forbid him (under penalty of lawsuit) from revealing the actual medication he received.
Obviously enough people complained about doing that, or it was unethical in the event of complications or side effects, that he no longer is hiding the fact that he is using Enbrel.
